In Search of a Cure for Crigler-Najjar Syndrome

The CNA is accepting TAX-DEDUCTIBLE donations through the KING’S WAY FOUNDATION, of Wichita, Kansas, a 501© organization, recognized by the IRS. These donations will be invested in research and clinical trials to find a cure.

All members of the CNA are volunteers and overhead costs such as supplies and postage is paid by these same volunteers, therefore 100% of your gift will go towards our stated goals. In addition KING’S WAY is generously providing 100% pass through, with no charge for overhead.

Research

There are several possibilities for research.  Gene Therapy looked like a winner in 1999.  Following the death of a young man undergoing gene therapy, the Federal Government shutdown all experiments.

Clinical trials are available, however we must raise $250,000.00 to begin the trials. We have received no grants from the NIH ORD.

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